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OAP Clinical Framework

Conclusion

The Clinical Framework supports the OAP Outcomes and Guiding Principles (Appendix B) by promoting consistency of approach amongst OAP service providers. It also recognizes the skilled and dedicated practitioners from across sectors and disciplines providing exemplary practices in partnership with children/youth with ASD and their families.

The framework aims to contribute to an ongoing discussion of what it means, in concrete real-life terms, to provide individualized and child-, youth- and family-centred services. It sets the stage for the development of positive, trusting relationships amongst families, support and service providers, educators and community partners. The goal of the OAP is to provide a personalized system of care that offers effective and evidence-based practices/interventions so that each child or youth with ASD in Ontario, within the context of their family and community, can reach their optimal potential.

ASD Clinical Expert Committee

The ASD CEC was established in 2012 to provide advice to the Ministry of Children and Youth Services on effective intervention, current research, and best clinical practices for working with children and young people with ASD.

An important long-term goal of the CEC is to aid in the development of a model of care that is up-to-date with the state of evidence, and includes a comprehensive continuum of services and supports for children and youth with ASD and their families.

CEC Members

Susan Honeyman, Chair, M.A., Reg. CASLPO, CCC-SLP
Wendy Roberts, Vice-Chair, M.D., FRCP(C)
Lise Bisnaire, Ph.D., C.Psych.
Jessica Brian, Ph.D., C.Psych.
Irene Drmic, Ph.D., C.Psych.
Maurice Feldman, Ph.D., BCBA-D, C.Psych.
Stelios Georgiades, Ph.D.
Ian Roth, M.H.Sc., Reg. CASLPO

CEC Assistants

Ellen Drumm, M.A.
Vivian Lee, Ph.D.
Carly Cermak, M.Cl.Sc., Reg. CASLPO, SLP(C)
Jason Xin Nie, M.Sc.

Contributors

We would like to sincerely thank our colleague, Dr. Jonathan Weiss, for his incisive guidance regarding our data collection process. Dr. Weiss was a valued member of the CEC from December 2012 until February 2017. We thank Dr. Lisa Schwartz for her advice and expertise in health care ethics. We thank MCYS for making our work possible. Ultimately, we extend our deep appreciation to the many parents, clinicians, and stakeholders who provided their invaluable input to our work.

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References

1. Georgiades, S., Bishop, S.L., Frazier, T. (2017). Editorial Perspective: Longitudinal research in autism- introducing the concept of “chronogeneity”. The Journal of Psychology and Psychiatry, 58(5), 634-636

2. Szatmari, P., Georgiades, S., Duku, E., Bennett, T., Bryson, S., Fombonne, E, Mirenda, P, Roberts, W., Smith, I.M., Vaillancourt, T., Volden, J., Waddell, C., Zwaigenbaum, L., Elsabbagh, M., Thompson, A., and the Pathways in ASD Study Team (2015). Developmental trajectories of symptoms severity and adaptive functioning in an inception cohort of preschool children with autism spectrum disorder. JAMA Psychiatry, 72(3), 276-283

3. Johnson, B.H., (2000). Family-centered care: Four decades of progress. Families, Systems, & Health, 18(2), 137-156

4. Gabovitch, E. M., & Curtin, C. (2009). Family-centered care for children with autism spectrum disorders: a review. Marriage & Family Review, 45(5), 469–498.

5. Christon, L.M. & Myers B.J. (2015). Family-centered care practices in multidisciplinary sample of pediatric professionals providing autism spectrum disorder services in the United States. Research in Autism Spectrum Disorders, 20, 47-57

6. Rogers, S. J., & Vismara, L. (2014). Interventions for infants and toddlers at risk for autism spectrum disorder, fourth ed. In F. R. Volkmar, R. Paul, S. J. Rogers, & K. A. Pelphrey (Eds.), Handbook of autism and pervasive developmental disorders: (Vol. 2. pp. 739–769). Hoboken, New Jersey: Wiley.

7. Gougeon, N. A., Bisnaire, L.M. (2011). Personalized Services: Conceptual and Practical Considerations. Conceptualizing and Operationalizing Personalized Services for Children and Youth with an Autism Spectrum Disorder. Strategic Fund Research Report submitted to Ministry of Children and Youth Services.

8. Ibid.

9. Rosenbaum, P., King, S., Law, M., King, G., & Evans, J. (1998). Family-centred service: A conceptual framework and research review. Physical & Occupational Therapy in Pediatrics, 18(1), 1-20.

10. Wong, C., Odom, S.L., Hume, K.A., Cox, A.W., Fettif, A., Kucharczyk, S., Brock, M.E., Plavnick, J.A., Fleury, V., and Schultz, T.R. (2015). Evidence-Based Practices of Children, Youth, and Young Adults with Autism Spectrum Disorder: A Comprehensive Review. Journal of Autism and Developmental Disorders, 45(7), 1951-1966

11. Hendricks, D. R., & Wehman, P. (2009). Transition from school to adulthood for youth with autism spectrum disorders: Review and recommendations. Focus on Autism and Other Developmental Disabilities, 24, 77–88.

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